I participated in a research protocol for the genetics of MH and was found to have a mutation. Do I need to have the test repeated?

Yes, we advise that it be repeated. Complex regulations that cover a clinical genetic test versus a research test are in force. We advise that the research findings be confirmed in the laboratory certified by the College of American Pathologists and certified under the CLIA act. MHAUS may be able to cover the costs of such clinical confirmation if the research protocol was conducted in the United States. Unfortunately, MHAUS does not have the resources to cover the costs for confirmation of tests done outside the United States. Please contact us for further details.