Press Releases

July 23, 2014
Drug Approved to Treat Rare Disorder Associated with Anesthesia: Newswise — Eagle Pharmaceuticals, Inc. today announced the U. S. Food and Drug Administration (FDA) has approved Ryanodex® (dantrolene sodium) for injectable suspension indicated for the treatment of malignant hyperthermia (MH), along with the appropriate supportive measures. MH is an inherited and potentially fatal disorder triggered by certain anesthesia agents …

July 2, 2014
Swimmers Take to Water in Support of Rare Disorder: Newswise — MARSHALL, Illinois - The Geoffrey Keller Memorial Open Water Swim held in honor of the late son of Curt and Kathleen Keller to raise funds to research better ways of managing Malignant Hyperthermia (MH) during surgery, to improve methods of detecting MH, and for MH awareness. For photos …

June 26, 2014
MedicAlert Foundation and Rare Disorder Group Provide Free Medical IDs: Newswise — MedicAlert Foundation is pleased to announce that individuals living with Malignant Hyperthermia (MH) are now eligible to receive free medical IDs and live 24/7 emergency response services as the result of a grant obtained through the Sandi Ida Glickstein Fund at the Malignant Hyperthermia Association of the United …

June 12, 2014
Ambulatory Anesthesia and Rare Disorder Groups Partner to Save Lives: Newswise — The Society of Ambulatory Anesthesia (SAMBA) has partnered with the Malignant Hyperthermia Association of the United States (MHAUS) to offer MHAUS membership benefits to active SAMBA members at a reduced rate. “SAMBA has always supported the MHAUS mission and primary focus on patient safety. This partnership will formalize …

June 4, 2014
Open Water Swim in Marshall, Illinois Highlights Rare Disorder: Newswise — The Geoffrey Keller Memorial Open Water Swim held in honor of the late son of Curt and Kathy Keller to raise funds to research better ways of managing Malignant Hyperthermia during surgery, to improve methods of detecting MH, and for MH awareness. Presented by Marshall, IL, the Geoff …

June 4, 2014
Nurse Anesthetists and Rare Disorder Group Partner to Save Lives: Newswise — The American Association of Nurse Anesthetists (AANA) has partnered with the Malignant Hyperthermia Association of the United States (MHAUS) to offer MHAUS membership benefits at a reduced rate to Certified Registered Nurse Anesthetists who are active members of the AANA. “For many years, the AANA has supported and …

June 3, 2014
Experts Say Stocking the Drug Dantrolene Saves Lives and Money: Newswise — MH experts say Storing dantrolene would save 33 lives per year at an incremental cost effectiveness ratio of nearly $200,000 (in 2010 dollars) per life saved, indicating that storing dantrolene at ambulatory surgical centers is very cost effective say, Malignant Hyperthermia Experts: Taiwo Aderibigbe, BS; Barbara H. Lang, …

March 12, 2014
Rare Disorder Groups Ask If You are Affected: Newswise — If you are affected by Malignant Hyperthermia, Congenital Muscular Dystrophies or Congenital Myopathy Subtypes, the Malignant Hyperthermia Association of the United States and the Cure Congenital Muscle Disease organization are asking for your help to enable research and clinical trials by registering with the Congenital Muscle Disease International …

March 3, 2014
March is Malignant Hyperthermia Awareness and Training Month: NNewswise — March to be Malignant Hyperthermia Awareness and Training Month reminds us that a Malignant Hyperthermia crisis is best managed with preparation. Malignant Hyperthermia is often experienced in individuals undergoing, what was expected to be, routine surgery but can also happen to a person outside of the operating room.

February 20, 2014
Nursing and Rare Disorder Groups Partner to Save Lives: Newswise — The Association of PeriOperative Registered Nurses (AORN) has partnered with the Malignant Hyperthermia Association of the United States (MHAUS) to offer MHAUS membership benefits to active AORN members for a reduced rate. “This partnership will assure perioperative nurses that they’ll have prompt access to the latest research and …

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